There are only so many things a person can do while being in a reclined position and being functional a few hours a day. I’ve read a LOT of books. Don’t get me wrong. I love to read. However, I recently caught myself binging the first two seasons of “Justified” after finishing “Sneaky Pete” and realized if I don’t do something with my brain, it will turn to mush like my leg muscles.
I have something called Dysautonomia which causes severe Orthostatic Intolerance. It’s one of many health problems. Depending on the severity of my low blood pressure, I use a power wheelchair, a walker rollator, or a cane. I only use the cane if I’m going to walk a very short distance. I always use my power wheelchair when shopping. My husband gets me out of the house once a week to go grocery shopping. I’m not allowed to drive thanks to the fainting problem.
Here is a graphic explaining the type of Dysautonomia I have. I chose it because it uses the terms “keel over” and “swoon.” I couldn’t help myself. There are better images available, but this one made me laugh.
I’ve also been told by neurologists over the years that I have Postural Orthostatic Tachycardia Syndrome, Pure Autonomic Failure, and Neurally Mediated Syncope. We patients are often left frustrated and clueless. No wonder some of us are depressed and have anxiety! I can’t speak for all patients, but my anxiety and depression came after years of chronic illnesses.
One thing I know for sure? When I stand or sit for very long, my legs turn purple and I faint. If I get up too quickly, I faint. Sometimes I don’t have to do anything at all, but my blood pressure drops and I faint. That’s the reasoning behind my website’s name & my blog’s title.
Gravity really does hate me.